Go Back  Bike Forums > The Lounge > Foo
Reload this Page >

Anyone have meniere's disease / fullness in left ear.?

Notices
Foo Off-Topic chit chat with no general subject.

Anyone have meniere's disease / fullness in left ear.?

Old 08-11-19, 05:58 PM
  #1  
spinnaker
Every day a winding road
Thread Starter
 
spinnaker's Avatar
 
Join Date: Mar 2005
Location: Pittsburgh, PA
Posts: 6,540

Bikes: 2005 Cannondale SR500, 2008 Trek 7.3 FX, Jamis Aurora

Mentioned: 24 Post(s)
Tagged: 0 Thread(s)
Quoted: 3388 Post(s)
Liked 59 Times in 42 Posts
Anyone have meniere's disease / fullness in left ear.?

I have recently developed an issue in my left ear where it feels like it is stuffed up, Much like you get after flying or diving but it did not clear. At first I went to an urgent care because it was most expedient. The doctor there diagnosed me with fluid behind the ear and that it should clear in a few weeks.

I waited two weeks and no improvement at all so I made an appointment with an ENT. She did not diagnose me with "meniere's disease" but she told me she "would treat me as I had meniere's disease" which confused me a bit. I have been to ENTs many years in the past and I just wonder if there isn't some witch doctoring going on in some of the diagnoses.

I was told to watch salt, chocolate and caffeine intake, Salt is really no problem as I have been watching that for years but cut back even more since the diagnoses. I have really drank that much caffeine. Maybe a glass of iced tea a day. And a couple of small squares of chocolate a day. But I have cut that out totally. The chocolate is the hard part as I am a chocoholic.

What confuses me is I have none of the other symptoms of meniere's disease. No dizyness, no vertigo, no nausea. My balance is pretty darn good for someone 60 years old. The only symptom I have is the fullness in the ear and diminished hearing in that ear. I have tinnitus but have had that for years.

I just wonder if she misdiagnosed me? I told here about my periodic sore throat and the draining I appear to have in my throat. I used to dive so just tried a valsva maneuver where you clear your ears. The right clears as normal and I can hear the pop. The left would not pop. I just wonder if it is Eustachian tube dysfunction? Though the tympanogram did not seem to show it or she missed it?

So has anyone else been diagnosed with meniers's with only fullness and diminished hearing? Does that come and go? Or do you always have it? Mine seems to alleviate periodically ( especially with exercise but never really goes away totally.
spinnaker is offline  
Old 08-11-19, 09:09 PM
  #2  
Hondo Gravel
The water is on fire
 
Join Date: Jan 2018
Location: Hondo,Texas
Posts: 1,136

Bikes: Too many Motobecanes

Mentioned: 1 Post(s)
Tagged: 0 Thread(s)
Quoted: 601 Post(s)
Liked 150 Times in 119 Posts
In 2015 I had a parotid tumor removed from my right jaw/ear and it ain’t no joke. It killed a Beastie Boy member a pop/rock band from the 80s. My local doc said they are mostly benign but insisted I see a cancer doc who stuck a needle in the side of my face he look at the slide and said no worries it isn’t cancer. But the lab should confirm it. So he was right! No cancer. The ENT surgeon removed the nasty growth and life went on! So Spinnaker take it seriously and all the precautions.
Hondo Gravel is offline  
Old 08-11-19, 09:30 PM
  #3  
spinnaker
Every day a winding road
Thread Starter
 
spinnaker's Avatar
 
Join Date: Mar 2005
Location: Pittsburgh, PA
Posts: 6,540

Bikes: 2005 Cannondale SR500, 2008 Trek 7.3 FX, Jamis Aurora

Mentioned: 24 Post(s)
Tagged: 0 Thread(s)
Quoted: 3388 Post(s)
Liked 59 Times in 42 Posts
No tumor unless he missed it. And these damn steroids are giving me hiccups like crazy.


I need some foo love sent my why for a cure please.
spinnaker is offline  
Old 08-12-19, 10:31 AM
  #4  
no motor?
Senior Member
 
no motor?'s Avatar
 
Join Date: Dec 2005
Location: Chicagoland
Posts: 6,170

Bikes: Specialized Hardrock

Mentioned: 27 Post(s)
Tagged: 0 Thread(s)
Quoted: 1058 Post(s)
Liked 118 Times in 88 Posts
She probably didn't diagnose you with it to avoid the problems that can occur later when the insurance companies see the claims.
no motor? is offline  
Old 08-12-19, 11:17 AM
  #5  
bigbenaugust 
always rides with luggage
 
bigbenaugust's Avatar
 
Join Date: Feb 2005
Location: KIGX
Posts: 2,108

Bikes: 2007 Trek SU100, 2009 Fantom CX, 2012 Fantom Cross Uno, Bakfiets

Mentioned: 3 Post(s)
Tagged: 0 Thread(s)
Quoted: 266 Post(s)
Liked 14 Times in 11 Posts
I've had dizziness/vertigo with tinnitus/fullness/hearing loss in my right ear only since I was 10. The vertigo has come and gone in phases, but none in the last 10 years. Fullness is occasional. Tinnitus and hearing loss have been progressive, used to be intermittent, but now stable over the last 8-10 years.

Multiple times I was screened for tumors, metabolic issues, etc. I was told at some point I was too young for Meniere's, then a young ENT suggested enlarged vestibular aqueducts and ordered an MRI. Turns out mine were barely detectable, so my inner ear basically ate itself up over a few decades with the lack of fluid circulation.

I've never been prescribed anything.
__________________
--Ben
2006 Trek SU100, 2009 Motobecane Fantom CX, 2011 Motobecane Fantom Cross Uno, and a Bakfiets
Previously: 2000 Trek 4500 (2000-2003), 2003 Novara Randonee (2003-2006), 2003 Giant Rainier (2003-2008), 2005 Xootr Swift (2005-2007), 2007 Nashbar 1x9 (2007-2011), 2011 Windsor Shetland (2011-2014), 2008 Citizen Folder (2015)
Non-Bike hardware: MX Linux / BunsenLabs Linux / Raspbian / Mac OS 10.6 / Android 7
bigbenaugust is offline  
Old 08-12-19, 11:26 AM
  #6  
no motor?
Senior Member
 
no motor?'s Avatar
 
Join Date: Dec 2005
Location: Chicagoland
Posts: 6,170

Bikes: Specialized Hardrock

Mentioned: 27 Post(s)
Tagged: 0 Thread(s)
Quoted: 1058 Post(s)
Liked 118 Times in 88 Posts
Originally Posted by bigbenaugust View Post
I've never been prescribed anything.
I'm prescribing you a bike ride, but with equally balanced kitty litter panniers!
no motor? is offline  
Likes For no motor?:
Old 08-12-19, 12:17 PM
  #7  
c0urt
moving target
 
c0urt's Avatar
 
Join Date: Oct 2006
Location: birmingham, al
Posts: 2,891

Bikes: looks like a specialized crux now

Mentioned: 6 Post(s)
Tagged: 0 Thread(s)
Quoted: 223 Post(s)
Liked 37 Times in 19 Posts
i have had tinnitus since i was like 4, and the full feeling slowly loosing hearing, but i all was thought it was because i ripped the ear off a few years ago
c0urt is offline  
Old 08-12-19, 04:47 PM
  #8  
RubeRad
Keepin it Wheel
 
RubeRad's Avatar
 
Join Date: Aug 2011
Location: San Diego
Posts: 8,707

Bikes: Surly CrossCheck, Moto Fantom29 ProSL hardtail

Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 13 Post(s)
Liked 134 Times in 101 Posts
A couple times, holding my nose while sneezing during a snotty cold, has forced snot into an eustachian tube, and it took a LONG time to clear itself out (like weeks). I don't know if this would be diagnosed as a 'disease' with a name, but it kind of sounds like the same thing. I think what mostly got stuff moving was to hold my nose and apply pressure (like unpopping your ears on an airplane, or pressurizing at the bottom of a swimming pool) to shake stuff loose
RubeRad is offline  
Old 08-12-19, 08:58 PM
  #9  
spinnaker
Every day a winding road
Thread Starter
 
spinnaker's Avatar
 
Join Date: Mar 2005
Location: Pittsburgh, PA
Posts: 6,540

Bikes: 2005 Cannondale SR500, 2008 Trek 7.3 FX, Jamis Aurora

Mentioned: 24 Post(s)
Tagged: 0 Thread(s)
Quoted: 3388 Post(s)
Liked 59 Times in 42 Posts
Originally Posted by RubeRad View Post
A couple times, holding my nose while sneezing during a snotty cold, has forced snot into an eustachian tube, and it took a LONG time to clear itself out (like weeks). I don't know if this would be diagnosed as a 'disease' with a name, but it kind of sounds like the same thing. I think what mostly got stuff moving was to hold my nose and apply pressure (like unpopping your ears on an airplane, or pressurizing at the bottom of a swimming pool) to shake stuff loose
I am hoping that is what is is. Just that the ENT did not detect it. I do feel a little less stuffy as time progresses. I guess the diet she has me on is good over all.

The ringing has been driving me crazy. I am considering hearing aids which is supposed to help. Though the sound always seems to intensify this time of year.
spinnaker is offline  
Old 08-13-19, 07:49 AM
  #10  
bigbenaugust 
always rides with luggage
 
bigbenaugust's Avatar
 
Join Date: Feb 2005
Location: KIGX
Posts: 2,108

Bikes: 2007 Trek SU100, 2009 Fantom CX, 2012 Fantom Cross Uno, Bakfiets

Mentioned: 3 Post(s)
Tagged: 0 Thread(s)
Quoted: 266 Post(s)
Liked 14 Times in 11 Posts
Originally Posted by spinnaker View Post
I am hoping that is what is is. Just that the ENT did not detect it. I do feel a little less stuffy as time progresses. I guess the diet she has me on is good over all.

The ringing has been driving me crazy. I am considering hearing aids which is supposed to help. Though the sound always seems to intensify this time of year.
One gets used to it over decades. :/

My hearing aids basically pipe the sound from the dead ear over to the good ear (what they call Contralateral Routing Of Sound, or one-sided CROS), so they do nothing for the ringing in the dead (right) ear. The right hearing aid is just a mic and a transmitter. Useful in meetings, not so much in large noisy rooms.

You'd want to go with what they call the bi-CROS setup where both sides can put stuff into the ears and then you can get into tinnitus-management white noise and whatnot.

OH, and I got a link to a PDF on tinnitus management from my audiologist at my last checkup. Did y'all know that tinnitus is the #1 (?) complaint at the VA?

https://www.ncrar.research.va.gov/Ed...urTinnitus.pdf
__________________
--Ben
2006 Trek SU100, 2009 Motobecane Fantom CX, 2011 Motobecane Fantom Cross Uno, and a Bakfiets
Previously: 2000 Trek 4500 (2000-2003), 2003 Novara Randonee (2003-2006), 2003 Giant Rainier (2003-2008), 2005 Xootr Swift (2005-2007), 2007 Nashbar 1x9 (2007-2011), 2011 Windsor Shetland (2011-2014), 2008 Citizen Folder (2015)
Non-Bike hardware: MX Linux / BunsenLabs Linux / Raspbian / Mac OS 10.6 / Android 7
bigbenaugust is offline  
Likes For bigbenaugust:
Old 08-13-19, 08:07 AM
  #11  
spinnaker
Every day a winding road
Thread Starter
 
spinnaker's Avatar
 
Join Date: Mar 2005
Location: Pittsburgh, PA
Posts: 6,540

Bikes: 2005 Cannondale SR500, 2008 Trek 7.3 FX, Jamis Aurora

Mentioned: 24 Post(s)
Tagged: 0 Thread(s)
Quoted: 3388 Post(s)
Liked 59 Times in 42 Posts
Originally Posted by bigbenaugust View Post
One gets used to it over decades. :/

My hearing aids basically pipe the sound from the dead ear over to the good ear (what they call Contralateral Routing Of Sound, or one-sided CROS), so they do nothing for the ringing in the dead (right) ear. The right hearing aid is just a mic and a transmitter. Useful in meetings, not so much in large noisy rooms.

You'd want to go with what they call the bi-CROS setup where both sides can put stuff into the ears and then you can get into tinnitus-management white noise and whatnot.

OH, and I got a link to a PDF on tinnitus management from my audiologist at my last checkup. Did y'all know that tinnitus is the #1 (?) complaint at the VA?

https://www.ncrar.research.va.gov/Ed...urTinnitus.pdf
Thanks for your concern. So how bad is your tinnitus? Did hearing aides help to at least ignore it? What do you do at night when it is bad?

Mine is pretty loud now. Kept me up last night but I think I was fixated on it. I try not to let it bother me. Hoping the uptick is just temporary. I get these episodes a few times a year. I always have it. But it upticks everyone in a while.

It really sucks doesn't it? I don't mind the lose of hearing all that much but the ringing is horrible.

I had it from a very early age. I would just get very short periods of ringing and roaring for no reason. We used to say "someone is talking about you". Then it became constant but manageable in my early 30s. Gotten worse over the years.

What I can't figure out is, if it is in the brain then why can't it be turned off? You would think hypnosis could help.
spinnaker is offline  
Old 08-13-19, 08:44 AM
  #12  
bigbenaugust 
always rides with luggage
 
bigbenaugust's Avatar
 
Join Date: Feb 2005
Location: KIGX
Posts: 2,108

Bikes: 2007 Trek SU100, 2009 Fantom CX, 2012 Fantom Cross Uno, Bakfiets

Mentioned: 3 Post(s)
Tagged: 0 Thread(s)
Quoted: 266 Post(s)
Liked 14 Times in 11 Posts
Originally Posted by spinnaker View Post
Thanks for your concern. So how bad is your tinnitus? Did hearing aides help to at least ignore it? What do you do at night when it is bad?
Mine is pretty loud now. Kept me up last night but I think I was fixated on it. I try not to let it bother me. Hoping the uptick is just temporary. I get these episodes a few times a year. I always have it. But it upticks everyone in a while.
It really sucks doesn't it? I don't mind the lose of hearing all that much but the ringing is horrible.
I had it from a very early age. I would just get very short periods of ringing and roaring for no reason. We used to say "someone is talking about you". Then it became constant but manageable in my early 30s. Gotten worse over the years.
What I can't figure out is, if it is in the brain then why can't it be turned off? You would think hypnosis could help.
The deafness and tinnitus have been concurrent for me... so all I have is ringing in the right ear now. I guess that makes it relatively easy to ignore.
I first noticed the hearing loss in early elementary school when I realized the pillow only made crunching noises when I slept on my left.
It's never bothered me at night or affected my sleeping. It's quiet afternoons in the office (when all I can hear is ringing) that are the worst.
__________________
--Ben
2006 Trek SU100, 2009 Motobecane Fantom CX, 2011 Motobecane Fantom Cross Uno, and a Bakfiets
Previously: 2000 Trek 4500 (2000-2003), 2003 Novara Randonee (2003-2006), 2003 Giant Rainier (2003-2008), 2005 Xootr Swift (2005-2007), 2007 Nashbar 1x9 (2007-2011), 2011 Windsor Shetland (2011-2014), 2008 Citizen Folder (2015)
Non-Bike hardware: MX Linux / BunsenLabs Linux / Raspbian / Mac OS 10.6 / Android 7
bigbenaugust is offline  
Old 08-13-19, 02:32 PM
  #13  
spinnaker
Every day a winding road
Thread Starter
 
spinnaker's Avatar
 
Join Date: Mar 2005
Location: Pittsburgh, PA
Posts: 6,540

Bikes: 2005 Cannondale SR500, 2008 Trek 7.3 FX, Jamis Aurora

Mentioned: 24 Post(s)
Tagged: 0 Thread(s)
Quoted: 3388 Post(s)
Liked 59 Times in 42 Posts
Originally Posted by bigbenaugust View Post
The deafness and tinnitus have been concurrent for me... so all I have is ringing in the right ear now. I guess that makes it relatively easy to ignore.
I first noticed the hearing loss in early elementary school when I realized the pillow only made crunching noises when I slept on my left.
It's never bothered me at night or affected my sleeping. It's quiet afternoons in the office (when all I can hear is ringing) that are the worst.
But it is quiet at night so how do you deal?

When I am working I notice it less because I am distracted.
spinnaker is offline  
Old 08-14-19, 07:17 AM
  #14  
bigbenaugust 
always rides with luggage
 
bigbenaugust's Avatar
 
Join Date: Feb 2005
Location: KIGX
Posts: 2,108

Bikes: 2007 Trek SU100, 2009 Fantom CX, 2012 Fantom Cross Uno, Bakfiets

Mentioned: 3 Post(s)
Tagged: 0 Thread(s)
Quoted: 266 Post(s)
Liked 14 Times in 11 Posts
Originally Posted by spinnaker View Post
But it is quiet at night so how do you deal?
That I can't explain. Unless it's because my ringing is very high-frequency (like an old TV) and that has some effect on my ability to dismiss it, vs. a more rushing/roaring sound.
__________________
--Ben
2006 Trek SU100, 2009 Motobecane Fantom CX, 2011 Motobecane Fantom Cross Uno, and a Bakfiets
Previously: 2000 Trek 4500 (2000-2003), 2003 Novara Randonee (2003-2006), 2003 Giant Rainier (2003-2008), 2005 Xootr Swift (2005-2007), 2007 Nashbar 1x9 (2007-2011), 2011 Windsor Shetland (2011-2014), 2008 Citizen Folder (2015)
Non-Bike hardware: MX Linux / BunsenLabs Linux / Raspbian / Mac OS 10.6 / Android 7
bigbenaugust is offline  
Old 08-14-19, 07:38 AM
  #15  
Machka 
In Real Life
 
Machka's Avatar
 
Join Date: Jan 2003
Location: Down under down under
Posts: 51,560

Bikes: Lots

Mentioned: 134 Post(s)
Tagged: 0 Thread(s)
Quoted: 2942 Post(s)
Liked 143 Times in 90 Posts
Have a read: https://vestibular.org/

Then go to your Doctor and get a referral to a physio trained in treating vestibular disorder and BPPV.
Machka is offline  
Old 08-14-19, 09:40 AM
  #16  
spinnaker
Every day a winding road
Thread Starter
 
spinnaker's Avatar
 
Join Date: Mar 2005
Location: Pittsburgh, PA
Posts: 6,540

Bikes: 2005 Cannondale SR500, 2008 Trek 7.3 FX, Jamis Aurora

Mentioned: 24 Post(s)
Tagged: 0 Thread(s)
Quoted: 3388 Post(s)
Liked 59 Times in 42 Posts
Originally Posted by bigbenaugust View Post
That I can't explain. Unless it's because my ringing is very high-frequency (like an old TV) and that has some effect on my ability to dismiss it, vs. a more rushing/roaring sound.

My ringing is very high in the right. More of a rushing but some high tone in the left.


Yes sounds like an old TV horizontal oscillator. I used to work on them all the time. I would be in a whole room of them and would sometimes be able to hear the TVs when they were on.
spinnaker is offline  

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Thread Tools
Search this Thread

Contact Us - Archive - Advertising - Cookie Policy - Privacy Statement - Terms of Service

Copyright © 2018 MH Sub I, LLC dba Internet Brands. All rights reserved. Use of this site indicates your consent to the Terms of Use.