So, I had a stroke. Now what?
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Argh! The frustration of waiting.
I met with my cardiologist today. He thinks I'm a good candidate for the corrective procedure. But, he won't continue till I get clearance from yet another Neurologist!? I know I have good health insurance. (Believe me, I pay enough for it...) But I feel like my insurance is being charged for extra opinions so everybody's buddy can make money here.
Sorry.
Had to vent.
I met with my cardiologist today. He thinks I'm a good candidate for the corrective procedure. But, he won't continue till I get clearance from yet another Neurologist!? I know I have good health insurance. (Believe me, I pay enough for it...) But I feel like my insurance is being charged for extra opinions so everybody's buddy can make money here.
Sorry.
Had to vent.
Sorry, man.
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Wednesday. Wednesday FEBRUARY 20 is the appointment with my, yet another-neurologist. Essentially an almost 3 week wait till I can get the go ahead from this Doctor. I really don't understand what's going on here. I feel like my life's on hold till this procedure is completed. Not being able to work to speed and as much is starting to have monetary effects.
Now, what did that Doctor say about STRESS??!!
Now, what did that Doctor say about STRESS??!!
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Well guys, I had my appointment with my neurologist today. I am not, NOT a candidate for the surgical procedure for my heart. Both he and the cardiologist agree that the main issue is the plaque in my posterior arteries. They are near 50% closed. Nothing can be done surgically so it's a regime of meds for me. I'm bummed for sure. I'm not convinced that the medication regime will take care of everything. Thanks for letting me vent. I'm trying to put a positive front out there for my wife...
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What meds are they recommending to clear the arteries or at least control further occlusion?
#55
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Well guys, I had my appointment with my neurologist today. I am not, NOT a candidate for the surgical procedure for my heart. Both he and the cardiologist agree that the main issue is the plaque in my posterior arteries. They are near 50% closed. Nothing can be done surgically so it's a regime of meds for me. I'm bummed for sure. I'm not convinced that the medication regime will take care of everything. Thanks for letting me vent. I'm trying to put a positive front out there for my wife...
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Well guys, I had my appointment with my neurologist today. I am not, NOT a candidate for the surgical procedure for my heart. Both he and the cardiologist agree that the main issue is the plaque in my posterior arteries. They are near 50% closed. Nothing can be done surgically so it's a regime of meds for me. I'm bummed for sure. I'm not convinced that the medication regime will take care of everything. Thanks for letting me vent. I'm trying to put a positive front out there for my wife...
Wow .. that sucks! Waited all that long for that! I presume they still believe you still have the hole in your heart, but that it isn't large enough to be a problem? Can you get a second opinion, or does the fact that cardio and neuro both agree qualify as a second opinion?
I'd want to know why they think the plaque is the "main problem." For example ... Is the place in your brain where the stroke occurred somewhere that that a clot or other obstruction was more likely to have originated in the posterior artery instead of bypassing your lungs?
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lol ... it just sounded soo familiar. My friend was ridiculously healthy and disciplined. And he only discovered the problem in a pre-op physical exam for a shoulder issue, and then realized he had symptoms that went ignored or undiagnosed for a long time. Fact is, the shoulder issue may have saved his life.
The good news is that the surgery was fairly routine and simple, and fixed his problem well. You'll be back on the bike in no time! Yea baby.
The good news is that the surgery was fairly routine and simple, and fixed his problem well. You'll be back on the bike in no time! Yea baby.
In any event, when they opened me up to patch the ventricular hole and give me an artificial heart valve they found a tiny hole between my atria that had never been detected. It was so small that no patch was needed. Surgeon simply sewed it closed. Pretty interesting that it was never detected. My conditions was one that demonstrated the abilities of ultrasound machines quite well. So for a couple of years in college I was a demonstration subject at mini-trade shows. I would lie on a table for two hours while techs from the different machine manufacturers demonstrated their machines' capabilities. My chest would end up coated in that gel, but $25/hr. was good money for a college student back in the mid-80s. Despite receiving the equivalent of dozens of ultrasound procedures, no on ever detected the atrial hole. I also had three cardiac caths (ages 6, 12 and 25) that never revealed it.
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Thanks for all the ongoing concern fellas. I honestly appreciate it.
After all the MRI's (4, 2 with contrast), CT's (3, 1 with contrast), blood work (I literally lost count!), and observation, my Doctors all conclude that the hole in my heart chamber is not significant nor the sinister culprit of my stroke. Only after a special order blood test was it discovered that I have a high amount of Lipoprotein-A. This contributes to plaque in my arteries. Most significantly, the back of the neck where it's, unfortunately, inoperable. At some point it's near 50% closure, bummer. I've been placed on a regime of Atorvastatin, Chlorthalidone and low-dose Aspirin. It's telling that 6 months ago I was haughty about not needing to be on any meds "at my age"! Karma much?
I've been following some blogs and posts regarding strokes. I am very aware of how fortunate I am to have come from this event with only limited after effect. I deal with a slight sight issue, headache and buzzing in my ears. To date, the sight thing has either improved or I'm "learning" to compensate. The headache is the worst offender now. Constant and at different levels from annoyance to "leave me alone"! The difficult thing in all this is the knowledge that there's undoubtedly another stroke in my future. Bugger. My only weapons against it are self-inflicted diet constraints, movement, and pills!
Other than that, I'm cautiously getting back into life. Trying to be even MORE aware of diet and exercise, being faithful to my meds, and aware of true matters.
Hey, stop reading and go for a ride....
Doug
After all the MRI's (4, 2 with contrast), CT's (3, 1 with contrast), blood work (I literally lost count!), and observation, my Doctors all conclude that the hole in my heart chamber is not significant nor the sinister culprit of my stroke. Only after a special order blood test was it discovered that I have a high amount of Lipoprotein-A. This contributes to plaque in my arteries. Most significantly, the back of the neck where it's, unfortunately, inoperable. At some point it's near 50% closure, bummer. I've been placed on a regime of Atorvastatin, Chlorthalidone and low-dose Aspirin. It's telling that 6 months ago I was haughty about not needing to be on any meds "at my age"! Karma much?
I've been following some blogs and posts regarding strokes. I am very aware of how fortunate I am to have come from this event with only limited after effect. I deal with a slight sight issue, headache and buzzing in my ears. To date, the sight thing has either improved or I'm "learning" to compensate. The headache is the worst offender now. Constant and at different levels from annoyance to "leave me alone"! The difficult thing in all this is the knowledge that there's undoubtedly another stroke in my future. Bugger. My only weapons against it are self-inflicted diet constraints, movement, and pills!
Other than that, I'm cautiously getting back into life. Trying to be even MORE aware of diet and exercise, being faithful to my meds, and aware of true matters.
Hey, stop reading and go for a ride....
Doug
Last edited by eatontkd; 02-28-19 at 07:56 AM.
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Thanks for all the ongoing concern fellas. I honestly appreciate it.
After all the MRI's (4, 2 with contrast), CT's (3, 1 with contrast), blood work (I literally lost count!), and observation, my Doctors all conclude that the hole in my heart chamber is not significant nor the sinister culprit of my stroke. Only after a special order blood test was it discovered that I have a high amount of Lipoprotein-A. This contributes to plaque in my arteries. Most significantly, the back of the neck where it's, unfortunately, inoperable. At some point it's near 50% closure, bummer. I've been placed on a regime of Atorvastatin, Chlorthalidone and low-dose Aspirin. It's telling that 6 months ago I was haughty about not needing to be on any meds "at my age"! Karma much?
I've been following some blogs and posts regarding strokes. I am very aware of how fortunate I am to have come from this event with only limited after effect. I deal with a slight sight issue, headache and buzzing in my ears. To date, the sight thing has either improved or I'm "learning" to compensate. The headache is the worst offender now. Constant and at different levels from annoyance to "leave me alone"! The difficult thing in all this is the knowledge that there's undoubtedly another stroke in my future. Bugger. My only weapons against it are self-inflicted diet constraints, movement, and pills!
Other than that, I'm cautiously getting back into life. Trying to be even MORE aware of diet and exercise, being faithful to my meds, and aware of true matters.
Hey, stop reading and go for a ride....
Doug
After all the MRI's (4, 2 with contrast), CT's (3, 1 with contrast), blood work (I literally lost count!), and observation, my Doctors all conclude that the hole in my heart chamber is not significant nor the sinister culprit of my stroke. Only after a special order blood test was it discovered that I have a high amount of Lipoprotein-A. This contributes to plaque in my arteries. Most significantly, the back of the neck where it's, unfortunately, inoperable. At some point it's near 50% closure, bummer. I've been placed on a regime of Atorvastatin, Chlorthalidone and low-dose Aspirin. It's telling that 6 months ago I was haughty about not needing to be on any meds "at my age"! Karma much?
I've been following some blogs and posts regarding strokes. I am very aware of how fortunate I am to have come from this event with only limited after effect. I deal with a slight sight issue, headache and buzzing in my ears. To date, the sight thing has either improved or I'm "learning" to compensate. The headache is the worst offender now. Constant and at different levels from annoyance to "leave me alone"! The difficult thing in all this is the knowledge that there's undoubtedly another stroke in my future. Bugger. My only weapons against it are self-inflicted diet constraints, movement, and pills!
Other than that, I'm cautiously getting back into life. Trying to be even MORE aware of diet and exercise, being faithful to my meds, and aware of true matters.
Hey, stop reading and go for a ride....
Doug
Sounds like you have a treatment plan and you'll be up and about on your bike sooner than later. Good luck to ya.
BTW, with all you've been through, you should treat yourself to riding somewhere warm ... like SoCal. C'mon out sometime and we'll give you a grand tour.
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So your ordinary blood tests showed no problems, and it wasn't until the stroke that they ordered the test that revealed your high amount of Lipoprotein-A? ....BTW, with all you've been through, you should treat yourself to riding somewhere warm ... like SoCal. C'mon out sometime and we'll give you a grand tour.
Now, about that warm weather....
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Big day for me: first ride since my stroke! Trust me, not a huge mileage event. But therapeutic in so many ways. Looks like the comeback will be as slow in it's return as a central PA spring. Note to self: probably shouldn't use the single speed to start...
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Nice going! Oy, I love the color of that bike.
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70 degrees today!!!
#66
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Just saw this thread, I hope you are making steady progress and still getting on the bicycle.
#67
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I just found this thread. Sorry for your troubles, Eatonkd!
I also just had a minor stroke three weeks ago. It's still considered "cryptogenic" in that they don't know what caused it yet. I'm also on the young side, 58, with my only risk being that I smoke 5 cigarettes a day (in the off season. Lol) and have slightly high blood pressure. (122 over 76, usually.)
I've gotten conflicting info about riding, with my GP telling me "no more than 75% effort!" And the neurologist telling to go ride or work out to capacity. I'm seeing a cardiologist next week, so I guess he'll be the tie breaker?
I'm freaked out that they don't know what caused it, but hoping that the further tests will reveal something, so at least I have a sense of causality and can take appropriate steps beside the handfuls of pills I'm taking.
It's just all so very odd, and I'm basically being treated as the would treat an overweight, diabetic, sedentary, 75 year-old. Just doesn't make sense to me, but I'm following doctor's orders to the letter, anyway.
I also just had a minor stroke three weeks ago. It's still considered "cryptogenic" in that they don't know what caused it yet. I'm also on the young side, 58, with my only risk being that I smoke 5 cigarettes a day (in the off season. Lol) and have slightly high blood pressure. (122 over 76, usually.)
I've gotten conflicting info about riding, with my GP telling me "no more than 75% effort!" And the neurologist telling to go ride or work out to capacity. I'm seeing a cardiologist next week, so I guess he'll be the tie breaker?
I'm freaked out that they don't know what caused it, but hoping that the further tests will reveal something, so at least I have a sense of causality and can take appropriate steps beside the handfuls of pills I'm taking.
It's just all so very odd, and I'm basically being treated as the would treat an overweight, diabetic, sedentary, 75 year-old. Just doesn't make sense to me, but I'm following doctor's orders to the letter, anyway.
#68
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Holy moly... yet another of us with a brain medical issue. Get well soon, Wheever. And please do let us know, eatontkd how you are recovering and the riding is going on that nifty bike you have!
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Just a suggestion: make sure your cardiologist is a cyclist, or at least some kind of athlete. Sedentary doctors, IME, don't want you to do anything strenuous. Athletic docs, OTOH, want to help you get back to what you were doing before your event.
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That's a VERY good idea.
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+2, definitely, from hard earned experiences.
Bill
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Those TIAs, mini-strokes, can be frustrating. My mom experienced many of those over the years. Usually they were diagnosed after the fact from symptoms or brain scans. She usually didn't have any dramatic symptoms and I had to watch for subtle changes in her posture, gait, motor coordination or thinking. She also had dementia so it was often difficult to be sure what was happening and what caused it. She was sedentary, from a culture an era when ladies didn't exert themselves to the point sweating or breathing hard, and resisted physical therapy.
And her older half-brother had several major strokes, with very obvious debilitating symptoms. He recovered from most of those but it was a chore. He also had serious problems with arterial plaque and multiple heart problems.
Offhand those are the only two folks in my family whom I can think of who had those particular health issues. I suppose I'm at some risk but I'm not going to change anything. I already watch my diet pretty carefully, get as much exercise as I can tolerate. No meds for cholesterol or BP yet, and so far no indication of any need for those.
I am a little wary sometimes of doing high intensity interval training, so I usually ease up just short of Zone 5 type efforts. I'm not training for anything. No plans to compete in crits or time trials again. Mostly I just want to be as fit as I can to enjoy group rides without getting dropped and solo rides to occasionally improve my personal bests on Strava. For the sake of preserving my knees I tend to spin more than mash, which may also minimize blood pressure spikes that might be a risk for TIAs.
And her older half-brother had several major strokes, with very obvious debilitating symptoms. He recovered from most of those but it was a chore. He also had serious problems with arterial plaque and multiple heart problems.
Offhand those are the only two folks in my family whom I can think of who had those particular health issues. I suppose I'm at some risk but I'm not going to change anything. I already watch my diet pretty carefully, get as much exercise as I can tolerate. No meds for cholesterol or BP yet, and so far no indication of any need for those.
I am a little wary sometimes of doing high intensity interval training, so I usually ease up just short of Zone 5 type efforts. I'm not training for anything. No plans to compete in crits or time trials again. Mostly I just want to be as fit as I can to enjoy group rides without getting dropped and solo rides to occasionally improve my personal bests on Strava. For the sake of preserving my knees I tend to spin more than mash, which may also minimize blood pressure spikes that might be a risk for TIAs.
#73
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Those TIAs, mini-strokes, can be frustrating. My mom experienced many of those over the years. Usually they were diagnosed after the fact from symptoms or brain scans. She usually didn't have any dramatic symptoms and I had to watch for subtle changes in her posture, gait, motor coordination or thinking. She also had dementia so it was often difficult to be sure what was happening and what caused it. She was sedentary, from a culture an era when ladies didn't exert themselves to the point sweating or breathing hard, and resisted physical therapy.
And her older half-brother had several major strokes, with very obvious debilitating symptoms. He recovered from most of those but it was a chore. He also had serious problems with arterial plaque and multiple heart problems.
Offhand those are the only two folks in my family whom I can think of who had those particular health issues. I suppose I'm at some risk but I'm not going to change anything. I already watch my diet pretty carefully, get as much exercise as I can tolerate. No meds for cholesterol or BP yet, and so far no indication of any need for those.
I am a little wary sometimes of doing high intensity interval training, so I usually ease up just short of Zone 5 type efforts. I'm not training for anything. No plans to compete in crits or time trials again. Mostly I just want to be as fit as I can to enjoy group rides without getting dropped and solo rides to occasionally improve my personal bests on Strava. For the sake of preserving my knees I tend to spin more than mash, which may also minimize blood pressure spikes that might be a risk for TIAs.
And her older half-brother had several major strokes, with very obvious debilitating symptoms. He recovered from most of those but it was a chore. He also had serious problems with arterial plaque and multiple heart problems.
Offhand those are the only two folks in my family whom I can think of who had those particular health issues. I suppose I'm at some risk but I'm not going to change anything. I already watch my diet pretty carefully, get as much exercise as I can tolerate. No meds for cholesterol or BP yet, and so far no indication of any need for those.
I am a little wary sometimes of doing high intensity interval training, so I usually ease up just short of Zone 5 type efforts. I'm not training for anything. No plans to compete in crits or time trials again. Mostly I just want to be as fit as I can to enjoy group rides without getting dropped and solo rides to occasionally improve my personal bests on Strava. For the sake of preserving my knees I tend to spin more than mash, which may also minimize blood pressure spikes that might be a risk for TIAs.
#74
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Yup, I understand. Once we've had a diagnosis of a potentially serious medical issue it's hard to put it out of mind. After I was diagnosed with thyroid cancer last year I've fretted over every minor sensation that seems a bit unusual -- difficulty swallowing, a sore throat, etc. Surgery seems to have gotten it for now without chemo. But it's always on my mind.
Before last year I wouldn't have given cancer a second thought. There's little history in my family, although my dad died of prostate cancer. Most of my family medical issues were diabetes from obesity and diet, and respiratory problems from smoking. I exercise, watch my diet, dropped 50 lbs gradually over about 15 years so it's sustainable, quit smoking more than 20 years ago, and overall my BP, HR, blood work and most diagnostics look good.
But some issues, like cancer and strokes, don't cooperate with some efforts at a healthy lifestyle. So I try to just focus on enjoying today.
Before last year I wouldn't have given cancer a second thought. There's little history in my family, although my dad died of prostate cancer. Most of my family medical issues were diabetes from obesity and diet, and respiratory problems from smoking. I exercise, watch my diet, dropped 50 lbs gradually over about 15 years so it's sustainable, quit smoking more than 20 years ago, and overall my BP, HR, blood work and most diagnostics look good.
But some issues, like cancer and strokes, don't cooperate with some efforts at a healthy lifestyle. So I try to just focus on enjoying today.
#75
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So after a visit with a Cardiologist, (yes! A road biker!) he thinks my stroke was caused either by Afib or something called a PFO--which is basically a hole between the ventricles that would have let, say, a small clot from the leg make it to my brain, rather than dissolving in the lungs.
For the Afib, I'm getting a little doohicky called a LinQ implanted that monitors my heart and uploads to a mother ship at night; for the possible PFO, a trans-esophageal echo (TEE) is being done first week of May. In the overall scheme of things, I think I'd rather it be the PFO, because it's repairable. If it's Afib, I'll have to be on blood thinners for the rest of my life, and at risk of a heart attack for all the Afib reasons.
Overall, I seem to have recovered well from the stroke, but as @canklecat says above, I'm hyper-vigilant about my heart and brain, worrying that I could have another stroke.
One upside is the Cardiologist told me to go ride as normal; the downside is when I did, I got light-headed, probably from the BP meds. :-/
Lordy, getting old sure does suck sometimes!
For the Afib, I'm getting a little doohicky called a LinQ implanted that monitors my heart and uploads to a mother ship at night; for the possible PFO, a trans-esophageal echo (TEE) is being done first week of May. In the overall scheme of things, I think I'd rather it be the PFO, because it's repairable. If it's Afib, I'll have to be on blood thinners for the rest of my life, and at risk of a heart attack for all the Afib reasons.
Overall, I seem to have recovered well from the stroke, but as @canklecat says above, I'm hyper-vigilant about my heart and brain, worrying that I could have another stroke.
One upside is the Cardiologist told me to go ride as normal; the downside is when I did, I got light-headed, probably from the BP meds. :-/
Lordy, getting old sure does suck sometimes!