Well crap!
#1
Senior Member
Thread Starter
Join Date: Mar 2014
Location: Northwest Arkansas
Posts: 85
Bikes: Giant Roam 3 Kona Esatto
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 22 Post(s)
Likes: 0
Liked 0 Times
in
0 Posts
Well crap!
Hey folks. My name is Layton and I've been watching and doing a little posting on here for a bit now. Last October I had a Leiomayosarcoma removed from my colon. This type of cancer is very rare and very aggressive. I also had a small spot on the upper lobe of my left lung. I was referred to MD Anderson in Houston. 3 weeks ago we did a lung biopsy and it and the 5 lymph nodes were positive for Adenocarcinoma. Lung Cancer. The "Good news" it isn't the Leiomayosarcoma. We will return to Houston on the 8th of July to see a radiologist and an oncologist. I'm 22 days from being eligible to retire. I'm pretty close to having my house paid for. During all of the testing I found out that other than the tumor I'm in good health. So that is a plus as far as the chemo and radiation goes. My wife and I rode the Katy trail in May and we just bought new mountain bikes. I'm not looking for sympathy. Just a little good vibes,prayers,and support. I'm kinda lost and don't quite know what to do with myself. Thank you if you took the time to read this. Layton.
#2
Senior Member
Join Date: Nov 2015
Location: Houston
Posts: 540
Bikes: Novarra Randonee 2016, Trek Verve 2 2015
Mentioned: 1 Post(s)
Tagged: 0 Thread(s)
Quoted: 97 Post(s)
Likes: 0
Liked 3 Times
in
3 Posts
One day at a time, one step at a time. Get rid of these tumors. Retire. Look around. Ride your bike. Look around some more. Things will start falling into place.
Get well first!
PS: I live in Houston. Drop me a PM if you'd like a change of scenery, even to go out for a cup of coffee. You need 50 posts to send PMs but you are nearly there.
Get well first!
PS: I live in Houston. Drop me a PM if you'd like a change of scenery, even to go out for a cup of coffee. You need 50 posts to send PMs but you are nearly there.
#3
just keep riding
Join Date: Feb 2005
Location: Milledgeville, Georgia
Posts: 13,560
Bikes: 2018 Black Mountain Cycles MCD,2017 Advocate Cycles Seldom Seen Drop Bar, 2017 Niner Jet 9 Alloy, 2015 Zukas custom road, 2003 KHS Milano Tandem, 1986 Nishiki Cadence rigid MTB, 1980ish Fuji S-12S
Mentioned: 15 Post(s)
Tagged: 0 Thread(s)
Quoted: 173 Post(s)
Liked 33 Times
in
22 Posts
Cancer sucks. I know this all too well. I thought of the treatments as being like climbing a hill. Just keep plugging away and eventually you're over the top and enjoying the downhill.
#4
rebmeM roineS
Join Date: Jan 2006
Location: Metro Indy, IN
Posts: 16,216
Bikes: Bacchetta Giro A20, RANS V-Rex, RANS Screamer
Mentioned: 15 Post(s)
Tagged: 0 Thread(s)
Quoted: 653 Post(s)
Liked 347 Times
in
226 Posts
A few good vibes heading your way from the Midwest. Hang in there. Ride when you can.
__________________
Bacchetta Giro A20, RANS V-Rex, RANS Screamer
Bacchetta Giro A20, RANS V-Rex, RANS Screamer
#5
Senior Member
Join Date: May 2010
Location: midwest
Posts: 2,528
Bikes: 2018 Roubaix Expert Di2, 2016 Diverge Expert X1
Mentioned: 14 Post(s)
Tagged: 0 Thread(s)
Quoted: 482 Post(s)
Liked 151 Times
in
105 Posts
Good Luck! Know thst well crap feeling too well. I had cancer 12 years ago and afterwards got back into biking after a long hiatus. I only had surgery and radiation but the latter was tough because it was in my throat. But now I am commuting over 30 mi round trip and doing longer weekend rides. Hope you have equal success and a quick recovery.
Best wishes
Best wishes
#6
Senior Member
Best wishes for an effective treatment!
#7
Senior Member
Thoughts, prayers, vibes coming your way.
#9
Senior Member
Join Date: Nov 2011
Location: South Carolina
Posts: 564
Bikes: 1976 Raleigh,2015 Bianchi Intenso, 2012 Specialized Secteur.
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 48 Post(s)
Likes: 0
Liked 2 Times
in
1 Post
Everyone at the Mag Outpost is sending you all the good vibes and well wishes we have for successful treatment, and an a long and enjoyable retirement.
If it helps to know, my dad and his next door neighbor went through a very similar situation to yours. They both fished together for years after retirement. It was almost comical for a long time. I'd call home and ask where Dad was, the answer was almost always the same.
If it helps to know, my dad and his next door neighbor went through a very similar situation to yours. They both fished together for years after retirement. It was almost comical for a long time. I'd call home and ask where Dad was, the answer was almost always the same.
#10
Life is good
Join Date: Jan 2001
Location: Not far from the Withlacoochee Trail. 🚴🏻
Posts: 18,209
Bikes: 2018 Lynskey Helix Pro
Mentioned: 13 Post(s)
Tagged: 0 Thread(s)
Quoted: 522 Post(s)
Likes: 0
Liked 10 Times
in
10 Posts
I'm sure it all sounds scary but keep a positive attitude, do what the docs tell you, and ride your bike.
When you're feeling down, read my signature.
When you're feeling down, read my signature.
__________________
The Lord is merciful and gracious, slow to anger and abounding in steadfast love. - Psalm 103:8
I am a cyclist. I am not the fastest or the fittest. But I will get to where I'm going with a smile on my face.
The Lord is merciful and gracious, slow to anger and abounding in steadfast love. - Psalm 103:8
I am a cyclist. I am not the fastest or the fittest. But I will get to where I'm going with a smile on my face.
#11
Senior Member
Join Date: Nov 2010
Location: Along the Rivers of Pittsburgh
Posts: 1,255
Bikes: 2011 Novara Forza Hybrid, 2005 Trek 820, 1989 Cannondale SR500 Black Lightning, 1975 Mundo Cycles Caloi Racer
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 258 Post(s)
Liked 291 Times
in
157 Posts
Keep a positive attitude. Sending good thoughts and prayers your way. We're dealing with a cancer situation in our immediate family as well. Hope things go well for you.
#12
Let's do a Century
Join Date: Oct 2004
Location: North Carolina
Posts: 8,316
Bikes: Cervelo R3 Disc, Pinarello Prince/Campy SR; Cervelo R3/Sram Red; Trek 5900/Duraace, Lynskey GR260 Ultegra
Mentioned: 59 Post(s)
Tagged: 0 Thread(s)
Quoted: 651 Post(s)
Liked 879 Times
in
408 Posts
Hang in there Layton. It sounds like you have a great medical staff on your team so that's great. Just keep focusing on the future.
#13
Senior Member
Join Date: Jul 2007
Location: South shore, L.I., NY
Posts: 6,885
Bikes: Flyxii FR322, Cannondale Topstone, Miyata City Liner, Specialized Chisel, Specialized Epic Evo
Mentioned: 18 Post(s)
Tagged: 0 Thread(s)
Quoted: 3242 Post(s)
Liked 2,089 Times
in
1,182 Posts
Pulling for you Layton.
I dealt with early onset Chronic Leukemia spring of 2015, but the illness and treatments played with my head for 2 years. I got some riding done, but way off my usual yearly. Modern medicine is just that and there are better treatments for most everything now, and getting better. Find and believe in your doctors and know that you can survive.
I'm back at swimming these past 8 mos. as well as riding this year better then the past 10 and it's all my attitude that I'm in a sort of remission and need to make use of the time. And feeling great. It can happen.
One thing I learned while undergoing my monthly treatments was that EVERYTHING takes a back seat to that. Work and riding. I was trying to stay "normal" and get in some mt. and road riding and with one stupid fall, cracked a kneecap 2 days before treatment#3 of 6. My Doc kind of yelled at me and said "you end up in the hospital and you get to reset the clock and start all over again, you want that ." It put things in perspective.
I dealt with early onset Chronic Leukemia spring of 2015, but the illness and treatments played with my head for 2 years. I got some riding done, but way off my usual yearly. Modern medicine is just that and there are better treatments for most everything now, and getting better. Find and believe in your doctors and know that you can survive.
I'm back at swimming these past 8 mos. as well as riding this year better then the past 10 and it's all my attitude that I'm in a sort of remission and need to make use of the time. And feeling great. It can happen.
One thing I learned while undergoing my monthly treatments was that EVERYTHING takes a back seat to that. Work and riding. I was trying to stay "normal" and get in some mt. and road riding and with one stupid fall, cracked a kneecap 2 days before treatment#3 of 6. My Doc kind of yelled at me and said "you end up in the hospital and you get to reset the clock and start all over again, you want that ." It put things in perspective.
Last edited by Steve B.; 06-30-16 at 09:51 AM.
#14
Senior Member
Join Date: Dec 2003
Location: Tucson, AZ
Posts: 11,016
Bikes: Custom Zona c/f tandem + Scott Plasma single
Mentioned: 3 Post(s)
Tagged: 1 Thread(s)
Quoted: 77 Post(s)
Likes: 0
Liked 19 Times
in
11 Posts
Souse and I are both cancer survivors.
She's had breast cancer, carcinoma on the face, leg and back.
I had prostate cancer.
At ages 83/81 we still ride tandem several times a week, plus I get out another several days a week on my single bike.
Hang in there . . . grown' old is not for sissies!
She's had breast cancer, carcinoma on the face, leg and back.
I had prostate cancer.
At ages 83/81 we still ride tandem several times a week, plus I get out another several days a week on my single bike.
Hang in there . . . grown' old is not for sissies!
#15
just keep riding
Join Date: Feb 2005
Location: Milledgeville, Georgia
Posts: 13,560
Bikes: 2018 Black Mountain Cycles MCD,2017 Advocate Cycles Seldom Seen Drop Bar, 2017 Niner Jet 9 Alloy, 2015 Zukas custom road, 2003 KHS Milano Tandem, 1986 Nishiki Cadence rigid MTB, 1980ish Fuji S-12S
Mentioned: 15 Post(s)
Tagged: 0 Thread(s)
Quoted: 173 Post(s)
Liked 33 Times
in
22 Posts
Kind of depends on the particular type of cancer and the treatment plan. I told my doctors during my treatments that I intended to ride my age in miles on my 53rd birthday which came after my intensive chemotherapy and a few weeks into my radiation treatments for my throat cancer. A few weeks later the pain was so intense and I was so weak from weight loss that I probably couldn't have done the ride, but with my Dr.'s concerned blessings, collaboration with my nutritionist, support from my family and friends and hard headed determination on my part, I rode a moderately hilly 54 miles (one to grow on).
#16
Senior Member
Prays and good vibes headed your way!
__________________
I have NEVER regretted going on a ride;
I have often regretted not going when I could have!
I am grateful for the headwind that challenged me today!
I am grateful for the tailwind that helped me go fast!
Clydesdales and Athenas Strava Club
https://www.strava.com/clubs/clydesda...bikeforums-net
I have NEVER regretted going on a ride;
I have often regretted not going when I could have!
I am grateful for the headwind that challenged me today!
I am grateful for the tailwind that helped me go fast!
Clydesdales and Athenas Strava Club
https://www.strava.com/clubs/clydesda...bikeforums-net
#17
Seat Sniffer
Join Date: Sep 2007
Location: SoCal
Posts: 5,630
Bikes: Serotta Legend Ti; 2006 Schwinn Fastback Pro and 1996 Colnago Decor Super C96; 2003 Univega Alpina 700; 2000 Schwinn Super Sport
Mentioned: 18 Post(s)
Tagged: 0 Thread(s)
Quoted: 945 Post(s)
Liked 1,990 Times
in
569 Posts
I've not had cancer (yet), but my wife did. I did all the research, planning, and support.
A great resource for information and support for virtually all kinds of cancer:
www.acor.org
Check it out and join an email list.
A great resource for information and support for virtually all kinds of cancer:
www.acor.org
Check it out and join an email list.
Last edited by Biker395; 06-30-16 at 10:36 AM.
#18
Senior Member
Join Date: Mar 2006
Location: San Antonio
Posts: 54
Bikes: 2015 Specialized Roubaix SL4 Expert, 2019 Specialized Diverge Sport
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 2 Post(s)
Likes: 0
Liked 0 Times
in
0 Posts
That sucks, here's to a speedy recovery! Best wishes.
#19
Spin Meister
Best of luck to you, Layton. That's a tough diagnosis.
Look into the drug Tarceva. It works for some people who have a particular genetic make-up, known as the EGFR mutation, of their lung cancer. Non small cell lung cancer (NSCLC) with EGFR is a genetically distinct form of lung cancer. It's usually found when tested for in patients who have never smoked, patients with adenocarcinoma, people of Asian origin and females - but not always. That was the case with my wife, who had three of the four attributes.
In fact, make sure you're tested for your specific type of cancer. There are new drugs and treatments all the time. When you know all about your cancer, research (and ask about) what treatments are available. In other words, be prepared to be an advocate for yourself.
One more thing. Always ask your wife or a friend to accompany you to each and every meeting with your doctors. Ask them to take notes or to record the session. A friend would be best. Why? You and perhaps your wife are not going to hear what your doctor tells you the same way someone else will. Your thinking is going to possibly be clouded for a while and you may not remember exactly what a doctor tells you. It's best to have someone else to also make note of what's said by the people guiding your treatment.
Look into the drug Tarceva. It works for some people who have a particular genetic make-up, known as the EGFR mutation, of their lung cancer. Non small cell lung cancer (NSCLC) with EGFR is a genetically distinct form of lung cancer. It's usually found when tested for in patients who have never smoked, patients with adenocarcinoma, people of Asian origin and females - but not always. That was the case with my wife, who had three of the four attributes.
In fact, make sure you're tested for your specific type of cancer. There are new drugs and treatments all the time. When you know all about your cancer, research (and ask about) what treatments are available. In other words, be prepared to be an advocate for yourself.
One more thing. Always ask your wife or a friend to accompany you to each and every meeting with your doctors. Ask them to take notes or to record the session. A friend would be best. Why? You and perhaps your wife are not going to hear what your doctor tells you the same way someone else will. Your thinking is going to possibly be clouded for a while and you may not remember exactly what a doctor tells you. It's best to have someone else to also make note of what's said by the people guiding your treatment.
__________________
This post is a natural product. Slight variations in spelling and grammar enhance its individual character and beauty and are in no way to be considered flaws or defects.
This post is a natural product. Slight variations in spelling and grammar enhance its individual character and beauty and are in no way to be considered flaws or defects.
#21
Senior Member
Join Date: Jul 2007
Location: South shore, L.I., NY
Posts: 6,885
Bikes: Flyxii FR322, Cannondale Topstone, Miyata City Liner, Specialized Chisel, Specialized Epic Evo
Mentioned: 18 Post(s)
Tagged: 0 Thread(s)
Quoted: 3242 Post(s)
Liked 2,089 Times
in
1,182 Posts
One more thing. Always ask your wife or a friend to accompany you to each and every meeting with your doctors. Ask them to take notes or to record the session. A friend would be best. Why? You and perhaps your wife are not going to hear what your doctor tells you the same way someone else will. Your thinking is going to possibly be clouded for a while and you may not remember exactly what a doctor tells you. It's best to have someone else to also make note of what's said by the people guiding your treatment.
Its easy to get wrapped up in the emotional aspect of the disease and diagnosis and not comprehend what the doctor is telling you. I know this well. Having somebody who can listen with less emotional involvement is really helpful as you can ask afterwards, questions you wish you had asked when you were sitting there in the doctors office.
As well, do not trust some of what you read on the internet. It's often times dated material and you have no way to verify the accuracy. Once you find a good and trusting doctor ask then where to find additional information. They will know (or should know) whats current and applicable.
And thoughts are with you.
#22
Senior Member
Join Date: Aug 2006
Location: Central Louisiana
Posts: 3,055
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 41 Post(s)
Likes: 0
Liked 8 Times
in
3 Posts
Layton, we will offer up prayers for you. Prior to my retirement, I rode quite a few road miles in NWA. It's a beautiful place. My wife is a cancer survivor for a little over 5 years, no problems. I just met a new cycling friend who goes to MD Anderson once every three weeks for chemo. We've ridden together three times so far. He's a good cyclist and is doing well.
#23
Senior Member
Thread Starter
Join Date: Mar 2014
Location: Northwest Arkansas
Posts: 85
Bikes: Giant Roam 3 Kona Esatto
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 22 Post(s)
Likes: 0
Liked 0 Times
in
0 Posts
Thank you all for your warm replies. I was having some anxiety problems Monday and Tuesday. Yesterday and today were better.gonna skydive and ride the bicycles this weekend. Thanks again.
#24
Senior Member
'Positive Waves', Baby!
Yeah, what can I say -- I'm an oddball...
Oh, and a cancer survivor!!
.
Yeah, what can I say -- I'm an oddball...
Oh, and a cancer survivor!!
.