Fibromyalgia and cycling:
#26
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Yes, of course. They are no secret. They are very popular for the use of Fibro. I was prescribed Cymbalta 20mg and Sulendac 20mg. I take the Cymbalta at bedtime and the Sulendac a.m. and p.m. I also take 3000 units of vitamin D. I also avoid aspartame and sugar. The rheumatoid specialist in Boston prescribed Lyrica. It is the "go to" med for Fibro but did nothing. She was very forthcoming in explaining that some people are greatly helped by meds. Some are helped somewhat and some unfortunately are not helped at all. When the Lyrica didn't help I was convinced I couldn't be helped since this was a top specialist in Boston, and Lyrica is the go to choice of treatment. Therefore I suffered for years until my husband convinced me to give a local dr a try. I thought: "What have I got to lose?" I got lucky. Within 2 weeks of this combination of meds I started to see a change. I was cautiously optimistic. However, for me it was the real thing. Before I knew it, not knowing anything about bicycles, I was reading, inquiring, watching youtube and basically consuming any info I could get on bicycles. When I told the dr that I was buying a bike she told me "oh no...you can't do that! You have fibro...that's too aggressive! You need to take the medicine and do gentle exercises!" Though her treatment with the medicine greatly helped me, her advice about riding a bike or kayaking, etc was off the mark. Today I am not pain free. I doubt I ever will be. However going from being debilitated and depressed to enjoying life filled with wonderful activities is more than I can ask for. Aside from my incredible husband, my best friend is my LIV Flouish sf1. It is a hybrid. I would not be able to handle a road bike. However this bike performs. It gives me a workout when I ride it for one and it also gives me a leisurely recreational ride on days when I need to maybe kick back a little. I hope this long boring response helps you or anyone out there who feels disparate with fibro. Life is worth fighting for. Fibromyalgia is fight. Don't give up! God bless and in these times..stay safe!
#27
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I was diagnosed with Fibro. I was prescribed all kinds of meds... which I don't take. All of my joints hurt and my muscles feel like they're on fire. I was sent to physical therapy and found that the only thing that worked was the stationary bike. So I went on a strick diet (holistic) and started riding again and I am starting to defeat this. I hope this may be of value to someone.......plus it's way more fun PT.
Hi,
Sad to hear about the Fibro diagnosis, don't let people get you down with the comments like "it's only in your head", they have never experienced it themselves so don't listen.
My dad has been sick for 15 years now, only the last few years they found more about what could cause his complaints, and because he was so sporty and fit doctors didn't take him seriously when he was telling them about the pain in neck, shoulders, back, legs, about his "down days" etc.
He was then diagnosed with neuralgic amyotrophy (syndrome of parsons-turner), which causes a heavy burning sensation in the nervous system especially in the upper limbs.
In the last year an MRI also revealed cystes on his nerve canal in the lower back causing severe pain in the lower limbs, numbness and not being able to walk properly.
All he can do is ride his electric bike on a light cadence and low power output. If he has a good day, he tends to try to do as many things as possible like having a long walk or work around the house but he always regrets it the days after.
He's been taking almost everything of vitamins, minerals, pain killers etc, the only that helped a bit were the opiats as I recall.
Just take it day by day and take it easy even on your good days is my advice... Don't lift heavy weights and try to protect your muscles as much as possible.
You might have a look at the parsons-turner as well because lots of doctors don't look further than "rest and you'll get better".
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