CT Cancer Survivor
#26
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I'm waiting for the letter to schedule my PET scan. Just waiting for the letter is stressing me out. Hope it comes before my next oncology appointment.
BEST WISHES TO EVERYONE
BEST WISHES TO EVERYONE
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#27
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best wishes to all. hang in there.
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#29
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Well, went for my results to see if I am clear from cancer. I have an hours drive each way to the hospital, 30 min to find a parking space (charged), then an hour and 3/4 wait in which time the complete waiting room empties and refills, twice. My wife wanted to be with me, even though she has real difficulty's with social settings like this, and we had to leave. I left telling the reception to arrange a telephone consultation. Driving away and phone rings, oh we are ready for you now….aaagh….sorry just organise a phone consultation please…..then tells me she does not work on a Wednesday. Ok someone else then or I will wait….she got real defensive then….really, just tell me, I know the system is failing, just book me in two hours later than the time you gave me….what a day, and it is the first day of a weeks holiday (had to use holidays up before xmas otherwise you lose them!). Let us see what tmw brings….nighty night all.
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#32
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Well, looks like the treatment has worked. Got an all clear on Tuesday. Will have to go for follow up CT scan in 3 months, and thereafter for the next five years on decreasing appointments. It’s not over until the fat lady sings they say.
I should feel ecstatic, but I feel kind of shocked. When you are in a bad situation you get on with it, no time to think, just do. You find yourself doubting, maybe they made a mistake, ah, I shook that off, don’t spend your years thinking that! It does feel like an anti-climax, like being made redundant from a job.
If you are in the fight, keep going, it's tough but you have to go for it. It is the ones you love around you who have a tougher time, and my wife has been my rock, and that is something I will always be grateful to her for being her.
Below is a link to a programme about head and neck cancer by a Welsh comedian who had exactly my condition, but he has a better way of expressing what it means. If you find yourself ill, I think it can help. If your condition is not going to improve, then I can only pass my heart felt feelings to you and your family and we will meet sometime on a dusty (car free) road.
“The comedian Rhod Gilbert was diagnosed with a little known form of head and neck cancer. This is the story of his intimate, inspiring and humorous journey through treatment”.
https://www.channel4.com/programmes/...-neck-for-su2c
I should feel ecstatic, but I feel kind of shocked. When you are in a bad situation you get on with it, no time to think, just do. You find yourself doubting, maybe they made a mistake, ah, I shook that off, don’t spend your years thinking that! It does feel like an anti-climax, like being made redundant from a job.
If you are in the fight, keep going, it's tough but you have to go for it. It is the ones you love around you who have a tougher time, and my wife has been my rock, and that is something I will always be grateful to her for being her.
Below is a link to a programme about head and neck cancer by a Welsh comedian who had exactly my condition, but he has a better way of expressing what it means. If you find yourself ill, I think it can help. If your condition is not going to improve, then I can only pass my heart felt feelings to you and your family and we will meet sometime on a dusty (car free) road.
“The comedian Rhod Gilbert was diagnosed with a little known form of head and neck cancer. This is the story of his intimate, inspiring and humorous journey through treatment”.
https://www.channel4.com/programmes/...-neck-for-su2c
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#35
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Best of continuing luck.
Just had my PET scan after my last chemo 4 weeks ago and awaiting on results next Tuesday.
Just had my PET scan after my last chemo 4 weeks ago and awaiting on results next Tuesday.
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#39
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i got my scan back to day and the last line states "consistant with a near complete metabolic response".
I looked it up and got "Complete response doesn't necessarily mean that you are cured, but it is the best result that can be reported. It means the cancerous tumor is now gone and there is no evidence of disease"
seeing doctor tomorrow for confirmation
Best wishes to everyone, and thanks for all the support
I looked it up and got "Complete response doesn't necessarily mean that you are cured, but it is the best result that can be reported. It means the cancerous tumor is now gone and there is no evidence of disease"
seeing doctor tomorrow for confirmation
Best wishes to everyone, and thanks for all the support
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#42
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Oh that is good news (understatement). One problem. Now nothing in your life will seem quite so serious. Enjoy this feeling for the rest of your life. Good on yer.
#43
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Bugger! Second scan result shows lump in neck still there. Consultant thinks it is not active, and it has not grown (that is a very good sign) but has given me two choices. Leave it and live with it or take the precaution of a neck dissection and cut it out. What the hell, go for it, let's have the full experience. Only downside is a 1 in 20 chance of arm/shoulder/facial muscle damage. I was just getting ready for spring with my old Carlton!
#44
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I had a full neck dissection done after chemo and radiation therapy. No big deal, so get that stuff outta there.
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#46
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Found out I had cancer due to complications recovering from a spinal fusion.
I’m now a 3 time survivor and I’m riding a bike again. Don’t listen to the doctors, I was never supposed to walk again…
Not sure what challenges I’m going to face going forward, but I’ll conquer them.
I’m now a 3 time survivor and I’m riding a bike again. Don’t listen to the doctors, I was never supposed to walk again…
Not sure what challenges I’m going to face going forward, but I’ll conquer them.
i like your style!
#47
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I'm now months into remission with only 1 surgery so I don't much about surgery since I only had one.
I would suggest 2nd opinion ref surgery just to be on safe site.
BEST WISHES on your decision
I road until 12/31 and started again in 2024. Stopped when the snow started and once it gets into the 40's I'll be out again
I would suggest 2nd opinion ref surgery just to be on safe site.
BEST WISHES on your decision
I road until 12/31 and started again in 2024. Stopped when the snow started and once it gets into the 40's I'll be out again
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#48
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What did humble me at work, a young woman who works here thanked me because I tell everyone who will listen to get checked out if they think something is wrong, took my advice and she is waiting to see if the shadow on her panceas is serious. Get to the head of the queue people if you can.
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#49
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BEST WISHES TO YOU Keep hanging on
Last MD check all looks good, doesn't need to see me for 3 months.
Maybe a PET/CAT SCAN in 6 months. the neuropathy in toes, is ongoing. going for PT 2x a week for the toes getting better
Last MD check all looks good, doesn't need to see me for 3 months.
Maybe a PET/CAT SCAN in 6 months. the neuropathy in toes, is ongoing. going for PT 2x a week for the toes getting better
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