Adaptive Cycling: Handcycles, Amputee Adaptation, Visual Impairment, and Other Needs Have a need for adaptive equipment to ride to compensate for a disability or loss of limb or function? This area is for discussion among those of us in the cycling world that are coming back from traumatic circumstances and tell the world, "No, you are not going to beat me down!"

Retinitis Pigmentosa won't stop me.

Old 05-13-17, 09:16 PM
  #1  
SpiderMike
eert a ekil yzarc
Thread Starter
 
SpiderMike's Avatar
 
Join Date: Oct 2000
Location: Pasadena TX
Posts: 2,560

Bikes: many bikes

Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 1 Post(s)
Likes: 0
Liked 0 Times in 0 Posts
Retinitis Pigmentosa won't stop me.

REtinitis Pigmentosa(RP) has slowed me down. The vision loss has me at legally blind now. I stopped riding until last Saturday. Motivated from watching a video about Bobby McMullen, I had enough. Reached out to me love friends that ride. One agreed to guide me on a trail. We met up Initially flowed him on his unicycle. Then he switched over to his Speciaized Epic. Despite the lack of riding for 3 years, I kept my Surly 1x1 on his tail for the most part. I don't know what is crazier, the changes in bikes over a 6 year period, that my wife allowed me to ride agin, or that I only wrecked a few times. My friend was freaking when I tried to tackle a tree. Survived with only scratches and a blood blister under a finger nail.

Link below is to my Instagram post of the take off

Does anybody else ride their own bike with the help of guides? If so, what verbal connands do you use between guide and blind follower?
SpiderMike is offline  
Old 05-14-17, 06:48 PM
  #2  
Juan Foote
LBKA (formerly punkncat)
 
Juan Foote's Avatar
 
Join Date: Jan 2010
Location: Jawja
Posts: 3,434

Bikes: Spec Roubaix SL4, GT Traffic 1.0

Mentioned: 11 Post(s)
Tagged: 0 Thread(s)
Quoted: 942 Post(s)
Liked 8 Times in 7 Posts
I wanted to give you kudos on balls of steel. I can't even imagine trying to have the trust in a another individual, or even in myself, to chance barreling along on a DF bike blind.

I would imagine you know more about this than I do...recall reading about a blind guy that uses a manner of echo-location "click" to ride a bike. I am sure a quick search would turn up something. Even in spite of that, I would imagine him having to have a guide or sighted individual make sure the area was smooth and clear of obstruction like potholes, loose sand.

Hope you work something out. Aside from your own bike, perhaps your SO would consider being the pilot on a tandem?
Juan Foote is offline  
Old 05-21-17, 07:44 PM
  #3  
donglebutter
Junior Member
 
Join Date: May 2017
Location: Oshkosh, Wisconsin
Posts: 15

Bikes: Salsa Fargo GX

Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 2 Post(s)
Likes: 0
Liked 0 Times in 0 Posts
I too have RP, and i am continuing to cycle. Cant live under a rock.
donglebutter is offline  
Old 05-23-17, 07:22 PM
  #4  
rubiconazoid
post tenebras lux
 
Join Date: Jul 2016
Location: Alamance County, NC
Posts: 74

Bikes: Trek 720, Centurion Accordo, Gary Fisher Mamba

Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 22 Post(s)
Likes: 0
Liked 0 Times in 0 Posts
Wishing you the best and hoping you safely continue to ride.
rubiconazoid is offline  
Old 05-31-17, 08:04 PM
  #5  
SpiderMike
eert a ekil yzarc
Thread Starter
 
SpiderMike's Avatar
 
Join Date: Oct 2000
Location: Pasadena TX
Posts: 2,560

Bikes: many bikes

Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 1 Post(s)
Likes: 0
Liked 0 Times in 0 Posts
Originally Posted by rubiconazoid View Post
Wishing you the best and hoping you safely continue to ride.
thank you seems the harder part now is scheduling amongst friends we all have kids
SpiderMike is offline  
Old 06-18-17, 09:17 PM
  #6  
donglebutter
Junior Member
 
Join Date: May 2017
Location: Oshkosh, Wisconsin
Posts: 15

Bikes: Salsa Fargo GX

Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 2 Post(s)
Likes: 0
Liked 0 Times in 0 Posts
went on a 25 mile charity ride, fun.
donglebutter is offline  
Old 08-02-17, 07:55 AM
  #7  
Beak58
Newbie
 
Join Date: Aug 2016
Posts: 4
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 1 Post(s)
Likes: 0
Liked 0 Times in 0 Posts
Originally Posted by donglebutter View Post
I too have RP, and i am continuing to cycle. Cant live under a rock.
Me too, especially now my drivers licence has been taken away.
Stay safe, from a fellow RetPig.
Beak58 is offline  
Old 03-29-18, 11:52 PM
  #8  
donglebutter
Junior Member
 
Join Date: May 2017
Location: Oshkosh, Wisconsin
Posts: 15

Bikes: Salsa Fargo GX

Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 2 Post(s)
Likes: 0
Liked 0 Times in 0 Posts
lol and cars. i stay to the side streets.
donglebutter is offline  
Old 04-04-18, 12:17 PM
  #9  
Leisesturm
Senior Member
 
Join Date: Jul 2005
Posts: 3,876
Mentioned: 17 Post(s)
Tagged: 0 Thread(s)
Quoted: 1185 Post(s)
Liked 10 Times in 9 Posts
My wife who is totally blind works with blind adults. She says that the hardest of her clients to reach are the ones with RP. One of her colleague's clients went hiking with a guide and they got caught out after dark. The client wasn't materially impacted one way or another and suggested they keep moving, but his guide (his GF) fell into a hole and is now a quadriplegic. Bikes have all kinds of hard, sharp and pointy bits on them and a rider also never knows exactly how or where they might fall. A cyclist can get seriously hurt from what could have been a minor fall. It isn't worth it beyond a certain point to go out there on a bicycle. You aren't overcoming or proving anything. You are just exposing yourself to significant risk of injury, incapacitation, and posibly worse. My wife does her running on a treadmill, her biking on a tandem, and membership in a gym has other options for cardio and also weight training. Wouldn't a person feel awful if they accidentally ran into the guide they were following and caused them significant injury? I can say all this because I am also partially sighted. As much as she benefits from my ability to still guide our tandem safely or navigate around all the pieces of equipment at our gym. If ever I couldn't do that anymore she would be the first one to start thinking about alternatives. FWIW.
Leisesturm is offline  
Related Topics
Thread
Thread Starter
Forum
Replies
Last Post
Dylansbob
Framebuilders
2
05-15-07 12:38 PM
VT to CA
Road Cycling
5
01-27-07 12:30 AM
chicagoamdream
Singlespeed & Fixed Gear
41
11-16-05 05:56 PM
olie05
Bicycle Mechanics
7
10-20-05 11:44 AM
Simko
Bicycle Mechanics
7
06-11-05 09:37 AM

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Thread Tools
Search this Thread

Contact Us - Archive - Advertising - Cookie Policy - Privacy Statement - Terms of Service

Copyright 2018 MH Sub I, LLC dba Internet Brands. All rights reserved. Use of this site indicates your consent to the Terms of Use.