bktourer1

I'm waiting for the letter to schedule my PET scan. Just waiting for the letter is stressing me out. Hope it comes before my next oncology appointment.
BEST WISHES TO EVERYONE

RB1-luvr

best wishes to all. hang in there.

Leisesturm

I see what you did there ...

awac

Well, went for my results to see if I am clear from cancer. I have an hours drive each way to the hospital, 30 min to find a parking space (charged), then an hour and 3/4 wait in which time the complete waiting room empties and refills, twice. My wife wanted to be with me, even though she has real difficulty's with social settings like this, and we had to leave. I left telling the reception to arrange a telephone consultation. Driving away and phone rings, oh we are ready for you now….aaagh….sorry just organise a phone consultation please…..then tells me she does not work on a Wednesday. Ok someone else then or I will wait….she got real defensive then….really, just tell me, I know the system is failing, just book me in two hours later than the time you gave me….what a day, and it is the first day of a weeks holiday (had to use holidays up before xmas otherwise you lose them!). Let us see what tmw brings….nighty night all.

JFHenry

Waiting sucks. Keep busy, do something fun. Keep going.

awac

Thanks brother! Have been cleaning a TA crank, and sorting nuts and bolts out…..it doesn’t take much to please me, let’s be honest….lol

awac

Well, looks like the treatment has worked. Got an all clear on Tuesday. Will have to go for follow up CT scan in 3 months, and thereafter for the next five years on decreasing appointments. It’s not over until the fat lady sings they say.

I should feel ecstatic, but I feel kind of shocked. When you are in a bad situation you get on with it, no time to think, just do. You find yourself doubting, maybe they made a mistake, ah, I shook that off, don’t spend your years thinking that! It does feel like an anti-climax, like being made redundant from a job.

If you are in the fight, keep going, it's tough but you have to go for it. It is the ones you love around you who have a tougher time, and my wife has been my rock, and that is something I will always be grateful to her for being her.

Below is a link to a programme about head and neck cancer by a Welsh comedian who had exactly my condition, but he has a better way of expressing what it means. If you find yourself ill, I think it can help. If your condition is not going to improve, then I can only pass my heart felt feelings to you and your family and we will meet sometime on a dusty (car free) road.

“The comedian Rhod Gilbert was diagnosed with a little known form of head and neck cancer. This is the story of his intimate, inspiring and humorous journey through treatment”.

https://www.channel4.com/programmes/...-neck-for-su2c

JFHenry

Cool
Now go do something to celebrate

awac

Lol. We did have a massive coffee and walnut cake…..who says we can’t rock eh? We also polished off some hot cross buns, but that just sounds over the top man! Lol.

bktourer1

Best of continuing luck.
Just had my PET scan after my last chemo 4 weeks ago and awaiting on results next Tuesday.

JFHenry

Don’t sweat the small stuff, everything is small stuff. I just keep so busy cancer can’t keep up.

Never stop, never quit.

awac

It’s a tough time waiting. My thoughts are with you, and the power f fingers crossed!

bktourer1

Thanks for your support

bktourer1

i got my scan back to day and the last line states "consistant with a near complete metabolic response".
I looked it up and got "Complete response doesn't necessarily mean that you are cured, but it is the best result that can be reported. It means the cancerous tumor is now gone and there is no evidence of disease"

seeing doctor tomorrow for confirmation

Best wishes to everyone, and thanks for all the support

JFHenry

Awesome news, it’s what we all hope for when we start this fight.

bktourer1

MD confirmed my previous post. Thanks to ALL THE FB READERS FOR THEIR SUPPORT.

awac

Oh that is good news (understatement). One problem. Now nothing in your life will seem quite so serious. Enjoy this feeling for the rest of your life. Good on yer.

awac

Bugger! Second scan result shows lump in neck still there. Consultant thinks it is not active, and it has not grown (that is a very good sign) but has given me two choices. Leave it and live with it or take the precaution of a neck dissection and cut it out. What the hell, go for it, let's have the full experience. Only downside is a 1 in 20 chance of arm/shoulder/facial muscle damage. I was just getting ready for spring with my old Carlton!

blacknbluebikes 

I had a full neck dissection done after chemo and radiation therapy. No big deal, so get that stuff outta there.

awac

Now brother. That’s what you want to hear! Thank you for the reply.

ka0use

puh-leeez kick butt and take names!
i like your style!

bktourer1

I'm now months into remission with only 1 surgery so I don't much about surgery since I only had one.
I would suggest 2nd opinion ref surgery just to be on safe site.
BEST WISHES on your decision
I road until 12/31 and started again in 2024. Stopped when the snow started and once it gets into the 40's I'll be out again

awac

Well neck scar like Frankinstein, staples all up one side, coool! Lymph node gone-4 hours of surgery- it was wrapped around the main nerve from neck to shoulder, which could have left me with arm damage, great surgeon! Now just to wait for the biopsy. All in all, gone good, no riding on the drops for a while, two weeks before staples out, then we will see if we have another round to go!

What did humble me at work, a young woman who works here thanked me because I tell everyone who will listen to get checked out if they think something is wrong, took my advice and she is waiting to see if the shadow on her panceas is serious. Get to the head of the queue people if you can.

bktourer1

BEST WISHES TO YOU Keep hanging on
Last MD check all looks good, doesn't need to see me for 3 months.
Maybe a PET/CAT SCAN in 6 months. the neuropathy in toes, is ongoing. going for PT 2x a week for the toes getting better

JFHenry

Here we go again

lung scan came back positive

anyone for a short ride?