Troul 

Re angle the seat opposite to what was "recommended" . Adjust in small increments until the discomfort has changed. Take note which adjustment helps more or less. You might need a wider seat.

rydabent

Depending on the actual source of your pain, there is no doubt if you can ride at all, probably a recumbent trike is your best choice. Besides that they are great fun. And---------since they generate almost no pain, you will find you can ride much longer.

darkslime

Its a muscular imbalance

BeginnersMind

Please consider trying medicinal cannabis, if you are able, particularly CBD-heavy varieties. It sounds like your body creates inflammation where inflammation ought not exist. CBD, being basically the non-psychoactive medicinal component of cannabis, might be a godsend. I am personally particularly prone to an unwarranted inflammation response, which significantly limited my activities as I got older and accumulated more injuries. CBD absolutely keeps me pain free, and keeps me going.

rbk_3

18 months after this started, I still am in pain every day. Sitting is a nightmare, any exercise flares it up. Been to a million different specialists and no one can tell em why.

I bought a $5k recumbent and I couldn't even ride that.

I miss cycling everyday, but at the same time, which I had never sat on a bicycle.

BobbyG

Sorry to hear this. Please continue to look for more treatments and other doctors, and revisit treatments and doctors that may not have worked in the past. A relative of mine has suffered from a debilitating painful condition for five years. We went from doctor to doctor, and tried treatment after treatment. After four years of constant, surreal agony with no quality of life, we revisited a treatment but with a twist...AND THAT WORKED. My relative's condition was mitigated to the point where life could be enjoyed again and independence could be re-established.

While it is not exactly the same condition as yours, I offer my example to prod you to continue to seek different treatments, and revisit those that haven't worked. I honestly had given up hope that my relative would be never again experience anything but pain, but despite my loss of hope, a near-cure was found.

Rule nothing out, no matter how wrong it sounds.

rosefarts

It sure sounds like you've developed a neuroma or you have a nerve bundle right at the sit spot. I've got one in my ankle from ice climbing. I can't wear any high top shoes or boots now. For skiing I have to cut a hole in the liner to keep pressure off that area.

Has a colorectal type doc looked at you? Like feet up in stirrups, and palpating different areas of the taint? This would be an extremely awkward exam but would probably tell you more.

A urologist deals with prostate, kidney stones, and bladders. Pelvic floor work is a type of pt. You still need a diagnosis. Find a different specialist.

BlazingPedals

Would you rather break both legs than ride a recumbent?

canklecat

Sorry to hear you're still not getting any relief. Since my first post to this thread I was hit by a car, breaking and dislocating my shoulder, and that was pretty painful for months. Then I needed surgery for thyroid cancer. But I'm back on the bike and grateful for that.

Take a look at the articles on the website for Ted's Pain Cream. In particular I'm interested in the theory about residual pain long after an injury should have healed. The developers are bona fide medical researchers and have published plenty of info to wade through for anyone interested. Basically, their theory is that resveratrol (grape extract) seems to "reset" or reboot nerves that continue to signal pain even in the absence of injury or illness. There's a lot more to it than that, but for $19 for a tube of the topical cream it's worth a try.

However applying a topical analgesic to the perineum might produce some skin reactions. So approach it very carefully. Fortunately I've had no problems with skin reactions, but I haven't applied it to the perineum either. But I have used salicylate topicals for groin rashes without problem, just some tingling that passes after about 15 minutes. They have an odorless gel formula without the wintergreen, and might be gentler for more delicate skin.

There may also be some referred pain from adjacent nerve damage, so the area where you're feeling pain may not be the actual source of the pain. But if you've seen specialists they've probably already covered this.

Unfortunately, in my experience in decades of coping with chronic and occasionally severe pain from headaches and, since 2001, injuries, it's very rare to find a doctor who's actually competent and diligent in helping to resolve lingering pain issues. Most of them just give up pretty quickly and either prescribe ineffective meds, or just tell you to learn to live with it. To get competent and diligent pain care (without getting drugged up on opiates), we'd need to be able to pay cash to top level sports medicine doctors. If we're depending on medical insurance to offset the costs of pain management, the results are usually unsatisfactory.

I've also had good results with kratom for temporary relief of some chronic pain from injuries, enough to sleep or exercise. But it's just a substitute for NSAIDs or opiates, not a cure for the underlying problem. Kratom isn't the new demon drug the press and FDA are trying to portray it as, nor is it the miracle cure some proponents suggest. It's a little more effective than NSAIDs, less effective than opiates, comparable to taking half a tramadol or half a hydrocodone with a cup of coffee. Just enough to get me started on a workout on really bad days, which is plenty good enough. I don't use it every day and take only a small amount, 1/2 or 1 gram, not the 5-7 gram doses some sites recommend. I'm not interested in any effects other than just enough pain relief to do my physical therapy.

Steamer

What does that mean? He bought a recumbent. Can't ride that either.

Kapusta

Man, I am really sorry to hear that this is still going on.

Have you had any MRIs of your lower back to look for pinched nerves?

TiHabanero

Rbk 3, I too, have pernnium pain after riding, however it is only sometimes, but when it occurs, it happens at night, like yours. The pain is real sharp, and feels like someone has put a clamp to it.
What I have found is at touring pace, meaning slower and enjoyable, it happens with more frequency. At a harder pace, it rarely rears it head after riding. Don't really know why this is, but it happens. I use a Turbo saddle, the same saddle I have been using since 1986. No cutout or anything.

Wattsup

I started riding because my hips could no longer tolerate running. If I find I can no longer cycle due to knee issues or something else, then my plan is to swim. If for some reason I wouldn't able to swim, then I will try base jumping without a parachute.

Duo

your problem may eventually heal, but prolly best laying off the bike. perhaps an indoor tread mill for a while will allow healing of this area.

totally agree Tim. God's grace is sufficient for me. if you can't ride find something else, it may heal. in the end it is about 'well done thou good and faithful servant'. trusting we will be in a better place, the rest of this is all temporary at best.

we have found that using an indoor Schwinn Air Dyne helps us in the winter. other times just walking or fellow shipping with others in the family. blessings bro.

lotsofbreaks

Hey, I'm experiencing similar issues -- haven't been on a bike since January and while I've improved am still experiencing pretty bad symptoms down there. I'm also trying to adjust to the possibility of never riding again. A neurologist did diagnose it as pudendal neuralgia, and I am doing daily physical therapy to try to address it, but I'm not optimistic. From my understanding is that once you've had nerve trauma how you recover is unpredictable and definitely not guaranteed. I hope you've seen a neurologist and pyshio to see if any of that helps. I empathize with you!

TimothyH

I hope you get better and I wonder if the OP is back on the bike or has any relief.

Yerdad Selzavon

I think I have the answer to your condition. I have suffered from your symptoms. The first steps: Don’t stretch or exercise. You should be evaluated by a physician who is a pelvic floor specialist. They exist in several medical fields - neurology, orthopedics, urology. A good starting place is to look for a Sports Medicine physician. I would speculate that you have injured the pudendal nerve, which innervates the peri-anal region, perineum, and genitals. You can have pain in any or even all of those regions. Exercising, especially cycling, or even sitting will worsen the pain- sometimes not immediately.. Bending at the hip will worsen it as well. Conversely, lying supine or sitting on the toilet does not produce more pain. Many things can cause your symptoms, but my medical background says it’s likely to be Pudendal Neuralgia, PNE, CPPS (they can be related). A specialist will not just speculate, but will investigate using a diagnostic protocol for PN/cyclist syndrome.

The bad news: cycling is terrible for PN. So is bending.
The good news: nerves heal. Furthermore, any pain secondary to spasm in the pelvic floor muscles can be treated by a PT. The PT should also be a PN specialist. Some even do a new procedure called dry needling. Sounds scary, but perhaps it’s better than “internal manual work.”

tkamd73 

Yup, goes right along with a lot of negative possibilities, as one ages, like the one of never breathing again.
Tim

jackb

I'm not sure how god got into this. The OP has a medical problem, not a spiritual one. This is a bicycle forum, not a religious forum. As people have used it as means to express their beliefs, allow me to do the same thing. If I were the OP I would continue to search for medical assistance. I would not listen to any comments having to do with god because there is no evidence that a god exists, any god, not just yours. There is no evidence for the existence of god, so I can't believe. Let's get back to bicycling discussions.

Steamer

The OP's last activity was 03-17-19 09:52 AM. You might want to PM or email him.

hillyman

back from the Dead!

Riveting

I was diagnosed with Stage 4 Lung Cancer (which metastasized to the lymph and vertebrae) 9 months ago, after tumors caused the upper half of my left lung to collapse for 2 weeks, along with several clots in both lungs. Almost overnight, I lost the cardio pulmonary capacity to simply walk the dogs for 3 minutes, and there were multiple times each day where my lungs would spasm into shallow panting, where I literally couldn't gain enough breath to say one word to my wife, the next day I was in the ICU for a week, and on morphine to relax the lungs. I definitely thought my riding days were over for sure, and likely my life too. Thankfully, a quick diagnosis via genetic testing of the lymph node biopsy, and then getting put on the proper meds ($500 per pill, once a day, 100% covered by insurance) had my CT scans looking great 3 months later. And now 9 months later I'm back to riding 120-150 miles per week, with 45 mile rides with 2,400', though a lot slower than I used to, but I'm marking that up to loss of muscle fitness, and not a side effect of the lung cancer. I'm told I'll be on those meds for the rest of my life, and that the cancer WILL become resistant at some point (maybe 7-10 years) and the tumor growth WILL return on the CT scans, at which point I'll be put on a different med, and this will repeat over and over until nothing works. Until then, I'm riding like I don't have a care in the world.

I've learned that even in your darkest hours, continue to have hope that you will eventually find the cure for what ails you, and that the thoughts about not being able to cycle again will some day be a distant memory.

rbk_3

i still have pain after Ido certain things but have not been able to get it fixed. I been to a couple pelvic physios and a bunch of chiropractors doctors etc.

I have taken up running this spring and finally sold by bikes, unfortunately. I only took a couple rides on the recumbent and had to take a huge loss on it which sucks

Barry2 

Have you tried sitting on the bike for 20mins watching TV and not pedaling?

Barry